Purple in Black: Epilepsy, Resilience, and the Fight for Justice
Epilepsy in Black communities has never existed outside of history. From slavery to modern medicine, Black bodies experiencing seizures have been demonized, punished, institutionalized, and dismissed rather than cared for. This piece traces the legacy of medical racism that has shaped epilepsy care, examines the ongoing disparities in diagnosis, mortality, and mental health, and names the often-overlooked realities of FND and PNES in African Americans. It is a call to remember, to confront, and to move from survival toward sovereignty in neurological care.
Welcome to a Space Where the Whole Story Matters
This blog was created to explore the intersection of epilepsy, mental health, PNES, FND, and the mind body connection through a trauma informed and culturally responsive lens. As a Licensed Marriage and Family Therapist Associate and epilepsy advocate, I share clinical insight, lived perspective, and reflections shaped by my work with the Epilepsy Reach Foundation. This space is dedicated to honoring the full stories of individuals and families navigating neurological conditions, identity, and healing, with compassion, clarity, and integrity.